Well, Colton tried out the bottle feeds and decided he was not quite ready just yet. The Occupational Therapist (OT) worked with Colton today and things just really didn't go well. Unfortunately, the process was too taxing on his system and he actually had a period of desaturation (blood oxygen levels dropped). He also had one apnea episode last night, a first since his PDA was closed. It's a stark reminder that he still has a way to go before we can get him home. The roller coaster ride continues. However, we keep moving forward and hope for better news tomorrow.
On the positive side, Colton did get his PIC line removed. This is basically a long term IV that is inserted and is used to provide additonal supplements such as lipids. The good news is that he no longer needs these additional supplements. Plus, you want these PIC lines out in the long term as the risk for infection goes up the longer you have them in place. They moved his OG tube (where the milk is distributed to his belly) from his mouth and put in a smaller one through his nose. This allows us to continue to try to out bottle feeds, an important step in getting him closer to going home.
Wendy is still receiving medical care for her wound and no ETA yet on when she will be discharged. The doctor wants to see some good signs of healing in that wound before she can come home. We miss her a bunch but know it's best to get her healed up before she comes back home to us where she belongs.
Our cousins (Nancy and Jerry) came by today to visit with us and brought Colton some new clothes. We also had some friends drop by with more food last night. We continue to be humbled by the love and support of our family and friends.
More updates tomorrow. All the best to you and your family....Love Bret, Wendy, Sydney and Colton